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“Then I took a breath and started reading and the first thing I saw on the first page was ‘Male pseudo-hermaphrodite, complete female phenotype.
Patient does not know Dx (diagnosis).’” Thoughts rushed through her head: First, I thought: This is great! How freaky does it make you feel when they say there’s no one else like you and no name for your condition?
Information about intersex traits can be overwhelming.
Whether parents are alerted to their child’s intersex traits at birth, puberty, or another point in life, they can struggle with confusing information and advice.
Procedures that could be delayed until intersex children are old enough to decide whether they want them are instead performed on infants who then have to live with the consequences for a lifetime.